Standards of Excellence for Family-Run Organizations

On Tuesday, June 30, 2015, FREDLA held a webinar to release the new Standards of Excellence for Family-Run Organizations. These 12 Standards provide guideposts for family organizations to meet legal and business requirements while still upholding the values that are the foundation of every family organization. To download the Standards of Excellence, click below:
Standards Of Excellence for Family-Run Organizations

To listen to the recording of the Standards of Excellence for Family-Run Organizations webinar,
Click Here

Standards of Excellence Community of Practice

As a follow-up to the webinar, FREDLA is facilitating an online Community of Practice for executive directors/executive leaders of family-run organizations interested in a shared learning process. The specific focus of the Community of Practice is Standards of Excellence for Human Resources. This can include anything from written personnel policies and procedures that govern employment, hiring practices, disciplinary and termination protocols, and benefits afforded to employees, and more.

To register for the Community of Practice, contact Malisa Pearson, FREDLA Project Coordinator at

Family-Run Executive Director Leadership Association (FREDLA) Approved for a $15k Award by the Patient-Centered Outcomes Research Institute

April 30, 2015 – The Family-Run Executive Director Leadership Association (FREDLA) is pleased to announce it has been awarded $15,000 from the Patient-Centered Outcomes Research Institute (PCORI) to begin developing a study measuring the impact of family peer support provider services. PCORI Pipeline to Proposal Awards enable individuals and groups that are not typically involved in clinical research to develop the means to develop community-led funding proposals focused on patient-centered comparative effectiveness research (CER). Established by the non-profit PCORI, the program funds three tiers of awards that help individuals or groups build community partnerships, develop research capacity, and hone a comparative effectiveness research question that could become the basis of a research funding proposal to submit to PCORI or other health research funders.

In this Tier One project, Improving Outcomes for Children with Mental Health Challenges and Their Families through Parent-to-Parent Peer Support, FREDLA will use the funds provided through PCORI’s Pipeline to Proposal Awards program to build a partnership of individuals and groups who share a desire to advance patient-centered outcomes research focused on children/youth with mental health challenges and their families. FREDLA will convene a stakeholder group of family leaders, researchers, and other stakeholders to design a multi-site study to compare multi-level outcomes for children/families receiving parent peer support in addition to traditional mental health services to the outcomes for children/families receiving traditional mental health services only. Along with family leaders across the country, Drs. Eric Bruns (Washington State Children’s Mental Health EBP Institute, University of WA School of Medicine), Bruno Anthony (Georgetown University) and Kimberly Hoagwood (IDEAS Center, NYU), will be involved in the project from the outset. More information on the project can be found at

FREDLA Small Group Meeting

On April 16 & 17, 2015, the Family Run Executive Director Leadership Association (FREDLA) held a small group meeting titled Family-Run Organizations: A Key Strategy for Expanding Systems of Care.  Click here for more

FREDLA’s National Data Collection Project presents at 28th Annual Research and Policy Conference ~ Tampa, Florida

Members of the National Data Collection Project Workgroup had the opportunity to present preliminary results and gather input from the field in a Discussion Hour on 3/25/15 at the 28th Annual Research and Policy Conference on Child, Adolescent, and Young Adult Behavioral Health in Tampa, FL. The goal of the Project is to bring together researchers, policy makers and family leaders to jointly begin developing national data collection measures and tools for family-run organizations and contribute to the body of research around family support.

Jane Walker (Executive Director of FREDLA) kicked off the hour with challenging questions to gauge the participants’ knowledge of family-run organizations, followed by a brief presentation by Millie Sweeney (Family Solutions Consulting) on the purpose of the Project and preliminary results from an ongoing survey of family-run organizations. Sara Nicholson (Nebraska Federation of Families for Children’s Mental Health) and Dr. Eric Bruns (University of Washington) facilitated a lively discussion with the attendees that garnered excellent feedback and suggestions for the direction of the Project. Some of the items addressed included the need to examine the impact of family-run organizations themselves as well as the impact of the parent-to-parent support/service provided by these organizations, explore the return on investment (ROI) of family-run organizations, and define the impact of family-run organizations’ enhancement of capacity for shared decision-making in systems.

Download FREDLA’s presentation by clicking here:

National Data Collection Project

WEBINAR The Role of Family Run Organizations Across Systems ~ January 27, 2015

Family-run organizations play a critical role in child-serving systems at the local, state and national levels. This webinar focused on how organizations contribute to system improvement, build collaborative relationships, and strategically advocate across systems. Presenters included administrative level representatives from family-run organizations across the nation that have a strong presence in specific systems, highlighting their efforts while sharing effective tactics that have led to their success in each system.

The Family Run Executive Director Leadership Association, in its role as a partner in the National Technical Assistance Network for Children’s Behavioral Health, hosted this 90-minute webinar to explore the many roles family-run organizations play at the child and family, service delivery, and systems levels.

To access the recording, click

To download the slides, click:

Role of Family Organizations in SOC Jan 2014